Wearing Eye Patches for our Baby!

Wearing Eye Patches for our Baby!


– Our family is going to do
a fun, little activity today, so we can understand Livia better. – [Tim] Livia’s been wearing
a patch for most of her life, over her right eye and we get
to see her wear it everyday, we think it’s cute, but we don’t
really know what it’s like, to actually wear one and what
impact that has on vision, and things, so we’re kinda
experiment and find out, today as a family. – [Dana] Our baby Livia
is four-months old, and when she was born she had
a cataract in her left eye, so her lens of her eye was cloudy. At four-weeks old she had
surgery to remove the cataract, the way that they remove it
is they take the whole lens, out of her eye. So her eye and her left eye
does not have a lens at all, so she wear a contact lens
on top, so she can see. That surgery created glaucoma in her eye, and so she had another
surgery at three-months old, and to release the pressure
that the glaucoma was creating, in her eye. So she’s had two surgeries
now at four-months old, and I think we’re on a good
track for her to be good, and not to need anymore
surgeries for a few years. Before eight-years old she’ll
probably have another surgery, where they will go in and
put a lens in her eye, once her eye has stopped developing. So today, we are going to
decorate patches for Livia, because she was blind when
she was born in her left eye, now that she has her contact lens, she has to patch her right eye. So that her brain will learn to use, her left eye that was blind at birth. And she’s going to be patching
for about eight-years. – We are actually first, we’re going to do an activity first, so before we decorate
all of these for Livia, you get to decorate a patch for yourself. And then we’re going to get lunch out, and together make lunch,
while wearing patches. All of us, me and Daddy
are going to do it too. – [Child] Okay. – [Dana] I tested a while ago, to see if it was better to do, Fabric markers or just
Crayola Washable markers, and the Crayola markers
just like blood everywhere, we had marker all over our hands, and it just wiped off. But the Fabric Markers
actually stay on the patches. These patches are really sticky, so before putting them on Livia, we always put them on our hand, and press them down really good, to take off the stickiness, cause it still sticks
really good on the face. – [Tim] And that way it
doesn’t rip your eye off. When you take it off. – [Dana] Alright I don’t
want your hair in it. – When Livia has lots of
hair, she will use it. – [Dana] You know what. – What. – [Dana] When Livia is your age, she won’t be wearing these. – Do I close my eye? – [Dana] I don’t know I’ve never worn one. I don’t know what Livia does. Maybe we’ll keep Livia’s head shaved. (laughing) – [Tim] No without having. – [Dana] All the hair like Hannah. There you go. – It feels real, sticky
stuff all over my face. – Ahoy, matey. (laughing) – [Dana] I’m very impressed
with the little ones, wanting to do this. And very thankful that
you’re learning with us. – [Tim] My turn. – [Dana] Oh I don’t think I
stuck it to my hand first. (laughing) Sorry! – Oh hey, I didn’t get
eyebrow waxing anyway. (laughing) – [Tim] My task, is to start getting
lunch ready for everyone, fortunately it’s pretty easy, we’re just heating up some
stuff in the microwave. And so nothing too complicated,
but still it’s just kind of, takes a little bit of adjustments, cause you kind of lose a lot
of peripheral vision over here. So you just kind of
like focusing over here. And I’m not, I’m right handed
so my left hand is getting, a lot more use now. The other thing I didn’t
really expect with this patch, is that my eye gets, it’s
like getting really hot, and sweaty in there. I feel like if this was
Summer time this would be, really uncomfortable for the baby. I think what’s happening is that, there is, like I’m going
more based on muscle memory, than I am like how things actually look, because when I’m getting
the food together, it looks like I should
be missing or something, but I know I’m not, because like I’ve done
it so many times before, that I just know that
this is the right spot. So my eye looks at things differently, than what my hands are doing. – [Dana] I thought I was doing
pretty good with my corn, putting the butter on
and putting the salt on. I couldn’t see the
salt, what was going on. I actually have my good
eye patched right now, which is what Livia does,
she patches her good eye, and she’s forced to
look out of her bad eye. I think this eye is my
eye that has a stigma, or the vision’s just
weaker than the other one. I don’t know, but I realized
I was putting on the pepper, the same as I was doing my salt, and I was missing with the pepper. I asked our Family Dr. at
Livia’s last well check-up, if her patching would determine, if she’s going to be left
handed or right handed, cause she seems to use her
left hand more and he said, I don’t know we’ll have to find out, so I’ll have to ask our
Optometrist and see if he has, noticed a pattern and
which hand a kid writes in. I don’t know, it’ll be
interesting to see if she will be, our only lefty, or if
she will become a righty, like the rest of us. – What I didn’t expect
from today was the kids, like I guess Halle was my biggest one, she came over multiple times like, ‘can I take it off’, ‘can I
take it off’? ‘I wanna be done’. And I would say like, that’s okay if you want
to take it off you can, Livia’s not able to take her’s off, like today she has to wear
it for four-hours today, and when she’s your age, she’ll be having to wear it for six-hours, and Halle like, you could
just see her processing that, and thinking about it and be like, wow well I kinda want to
know what that’s like, and I’ll keep on wearing it. – [Tim] How’s X-box going with patches on? – [Both] Good. – I’m not running into, now you’re in. – [Tim] Is it basically the same? – Yeah kinda. – [Tim] Feel different at all? – No. – [Tim] Well that’s good. – I was really impressed with
how excited the kids were, of wanting to do this. Like I was thinking, oh
it’s going to be a fun idea, like and hoping they would
really like it and enjoy it. And they did, they enjoyed it as much as
I was hoping they would. – [Tim] Livia gets to do it
everyday, why can’t we do it. – [Dana] And even the twins
jumping in and being like, yeah I’ll wear one, I didn’t think they would wear one at all. I was thinking that the
ones they were decorating, Livia was going to wear. Livia is at two hours and 40
mins of patching so far today, and the rest of us are
at an hour and a half. But we’re going to go
ahead and take our’s off, because I don’t know
what happens to our eyes, with patching them when
you don’t need too. But I just wanted all of us, to experience an amount of time, and I know from following
other people’s stories of, when Livia gets older,
there’s going to be some days, where it’s a struggle
for her to keep it on. And I’m hoping that this
experience with the kids, is going to be, I’m getting
emotional over this, I hope it’s going to be a moment where, our family team really rallies around her, and maybe somebody steps up and says, ‘Hey, I’ll patch with you today’, and just support her and help her do this, because those hard days are going to come. – Livia hit her four-hours
of patch time for today, so we took off her patch and
now she gets to use both eyes, which is typically, when she gets like super smiley and happy, at the end of the day. Yay I got my patch time in. Before she goes to bed, we have to take out her contact lens, so she’s already to go,
her contact lens is in, the eye that had surgery
which is this eye. – [Children] I want to eat your finger. – [Dad] She has no natural lens, so she wears a contact lens, I don’t think you guys are
going to be able to see it. Ready to go sleep. I love you Livia. (laughing) Oh, it’s dark in here. Yeah you like that, you’re
like yay sleep, I’m so sleepy. Put me to bed, there you go. Got your pacifier. And we got the sound machine on over here, so she’s good to go. Goodnight. – [Dana] I think for me wearing the patch, was good, I wanted to
experience it and everything, but now like sitting down
and thinking through it, I feel like I will know
what the struggle is, when she comes to wanting to fight it. Like before today I didn’t
know what it felt like, to wear it, what it
feels like on your face, when your eyes itchy and
you can’t scratch it. – [Tim] It’s getting hot and sweaty. – [Dana] Yeah and
there’s been times where, Livia’s cried while she’s patching, and her patch is all wet with tears, and I would assume that’s
got to be really annoying, to be wearing a patch
that’s got tears in it. – [Tim] We still have a
lot ahead of us with Livia, and it’s only the beginning of the story, so we appreciate you guys
being a part of it with us. And we look forward to
sharing the rest of it, over the next many years as she grows up, so just follow along,
if you haven’t already. And we’ll see you guys in our next Vlog, every Monday, Wednesday,
Friday, see you then. – [Both] Bye.

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